Category Archives: IAC 2012

July 24, 2012 · 2:51 pm

Hillary Clinton at IAC: Achieving an AIDS-Free Generation

By Jane Coaston

The biggest message from IAC thus far?

Hope for the end of AIDS.

That was the message of U.S. Secretary of State Hillary Clinton’s address at the International AIDS Conference yesterday. Speaking to an overflow crowd on Monday, Secretary Clinton spoke of the United States’ commitment to ending the AIDS crisis worldwide.

“I am here to set a goal for a generation that is free of AIDS,” Clinton said. She spoke of the past – about how, during the last IAC in the United States in 1990, U.S. Global AIDS Coordinator Dr. Eric Goosby ran a triage center for people living with HIV who became ill during the conference.

She talked about the thousands of people who have worked tirelessly to support and treat people living with HIV.

“Caring brought action,” she said, “and action has made an impact.”

Secretary Clinton also discussed how PEPFAR – the U.S. President’s Emergency Plan for AIDS Relief – is beginning to shift in order to better serve partner organizations and countries, and how the Global Fund is now a key partner in determining how and where to best deliver treatment for HIV/AIDS.

“Now all of these strategic shifts have required a lot of heavy lifting,” she said. “But it only matters in the end if it means we are saving more lives – and we are.”

Secretary Clinton focused much of her speech on the role of women in the HIV/AIDS epidemic. In her remarks, Clinton announced five new funding streams to battle AIDS, including $80 million for PMTCT efforts and $37 million to focus on high-risk populations, including female sex workers.

“Women want to protect themselves from HIV and they want access to adequate health care” she said. “And we need to answer their call.”

She added that family planning efforts were key to keeping women and children healthy.

“Every woman should be able to decide when and whether to have children. This is true whether she is HIV-positive or not. “

Secretary Clinton closed her remarks by talking about her first visit to the AIDS Quilt in 1996 – the last time the quilt could be displayed in its entirety.

“We are all here today because we want to bring about that moment when we stop adding names (to the Quilt), when we can come to a gathering like this one and not talk about the fight against AIDS, but instead commemorate the birth of a generation that is free of AIDS.”

To watch Secretary Clinton’s speech, click here. To read the remarks, click here.

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Filed under Advocacy, IAC 2012, PEPFAR, PMTCT, U.S.

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· 1:09 pm

An Unstoppable Force

By Taylor Moore

This morning I had the privilege of joining Foundation Ambassador Florence Ngobeni-Allen at a special breakfast on Capitol Hill. It was hosted by Senators Lindsey Graham and Patrick Leahy, and Congresswomen Kay Granger and Nita Lowey, and included a bipartisan audience of leading U.S. policymakers.

I went in to the event expecting a wonderful morning, with remarks from a roster of champions in the fight against AIDS, including Elton John; Michele Sidibe; the Deputy President of South Africa, Kgalema Motlanthe; John McGrue; Dr. Rick Warren, and others.

But the event became much more.

Foundation Ambassador Florence Ngobeni-Allen addressing the Congressional breakfast.

Senator Leahy opened the breakfast calling for bipartisan support for an AIDS-free generation. He expressed his appreciation to the global audience for efforts to continue momentum in the fight against AIDS, and urged his colleagues to remain committed to the cause.

Other speakers echoed that call for a shared responsibility and commitment. Dr. Rick Warren, co-founder of Saddleback Church, spoke of the faith community’s contributions to the fight against AIDS, and the importance of collaboration among private, public, and faith communities in ongoing work against the disease. “Thank you for caring,” he said. “If we want to end AIDS, I am on your side.”

But it was Sir Elton John who summed up the theme of the morning best, stating that “the power of people working for good is an unstoppable force,” and that together, our sustained support and contributions have and will continue to make a dramatic impact in the fight against AIDS.

Elton John’s personal contributions – more than 25 years as a leader in the AIDS community – are emblematic of the unstoppable force he urged others to join this morning.  Also part of that force is Florence Ngobeni-Allen.

Florence spoke to the audience of losing her daughter Nomthunzi to AIDS more than 15 years ago, and how that painful loss led her to become a counselor in her community. At the time, the medicines to keep an HIV-positive child healthy were unavailable in Florence’s home country of South Africa, and too many mothers had to watch their children die from AIDS.

Florence worked as a counselor for these women because she knew what the desperate fight to save a child from an untreatable disease felt like. Motivated by her love for Nomthunzi, Florence became committed to doing anything possible to help other mothers avoid that loss.

When prevention of mother-to-child transmission of HIV services (PMTCT) came to South Africa 10 years ago, Florence’s world changed. As she said in her remarks, she was soon able to share hope, not grief, with the women in her community, and eventually, her role shifted from counselor to advocate and activist, fighting for access to and education about these lifesaving services.

Later, Florence would join many of these women, experiencing the joy of a healthy child herself through the birth of her two HIV-negative children, Alex and Kulani.

Everyone who heard her knew that when Florence spoke, she wasn’t just sharing her own story. She was representing all women affected by HIV — every mother who had lost a child to AIDS, who had experienced the miracle of PMTCT, who had witnessed the epidemic’s impact firsthand, and who was also part of that unstoppable force in the fight against AIDS.

Florence’s personal message of heartbreak and hope, and the reception she received in that room of peers this morning, reminded me that our fight against AIDS is not only a shared fight, but a winnable one as well.

Florence, Sir Elton John, and the other incredible leaders at this morning’s breakfast are representatives of a much larger community committing to a future free of AIDS. And their message this morning was loud and clear: we must remain committed, we must work together.

If we do, we WILL end AIDS.

Florence Ngobeni-Allen, Dr. Rick Warren, and Michel Sidibe

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Filed under Advocacy, EGPAF, IAC 2012, PMTCT, Public Policy, Public-Private Partnerships, South Africa, Uncategorized

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· 12:53 pm

“Growing Old With HIV” : Transitioning from Pediatric to Adult Care

By Jane Coaston

For years, children living with HIV/AIDS were left out in the cold by conventional treatment methods. But as treatment methods improve, more and more children are growing up with HIV, and they face unique challenges and obstacles. On Monday, the Elizabeth Glaser Pediatric AIDS Foundation hosted a panel discussion of adolescent HIV treatment needs, entitled ” Addressing the Psychosocial Needs of Transitioning Adolescents Living with HIV Since Birth: A Global Perspective.”

Organized by Foundation Ambassador Cristina Pena , the panel featured another Foundation Ambassador, Jamie Gentille. Other members of the panel included Princess Nuru Nabbumba Kisitu of Uganda, Melissa Sharer of AIDSTAR-One, Rena Greifinger of the One Love Project, Alden Nouga of Pathfinder International, Joanna Busza of the London School of Hygiene & Tropical Medicine, and Dr. Susan Kasedde of UNICEF.

Foundation CEO and President Chip Lyons opened the panel. He thanked the Foundation Ambassadors, who he called heroes “by virtue of their fortitude and strength,” and commended Cristina for her efforts to put together the panel. He talked about how vitally important these discussions are. “We’re missing data on young people with HIV,” he said. “It’s difficult to provide the tools that caregivers require.” He added that though there are funding concerns, “a question mark is not a stop sign.”

Jamie Gentille spoke first, and told her story of being infected with HIV during a blood transfusion in 1982. She talked about how after she was diagnosed with HIV at age 8 – a virtual death sentence at the time – her family spoiled her with vacations and gifts to make the time she had left as much fun as possible. But after the National Institutes of Health (NIH) approved a drug protocol for children living with HIV in the late 1980s, Jamie said that “the window of hope got a little bit bigger.” Today, she is 32 years old, and she said, “my sights are set for 80.” Jamie talked about how the needs of youth living with HIV are fairly unexplored. “20 to 30 years ago, we would have never thought about growing old with HIV.”

Princess Nuru Nabbumba Kisitu spoke next. She talked about how she was the last to know her HIV status, and nearly died in 2006.  But when she first tested positive, she laughed at the counselor who gave her the news – “How can you say I have HIV?!” She said that when she tested positive a second time, she was “shattered” by the news. The psychosocial support she received in Uganda was very important to Princess – it was key to her dealing with the fear and tension she felt about her HIV status, and the side effects of her medication. Princess also discussed the role of stigma and the challenges of disclosure, and shared a story of being shamed at a clinic and told that if she returned to the clinic pregnant, she would be cut off from her medication and left to die.

The issues of stigma and the fears of disclosure were a major subject of discussion for the panelists. Melissa Sharer discussed how both perinatally- and behaviorally-infected young people are forced to battle not only HIV, but also the stigma and shame surrounding the disease. Many are also coping with grief – the loss of parents or caregivers from AIDS – and they need providers with the training necessary to work with their needs. Rena Greifinger continued the discussion, asking the audience to “think about your own adolescence” and add to those challenges those involved in living with HIV – medications, losing loved ones, isolation and depression, fears of disclosure, possible weak links to effective care and support, and the pain of stigma that can arise from schools, religious organizations, and even clinics designed for treating people living with HIV. Rena said that young people living with HIV need “holistic, intentional, and sustainable” psychosocial support. “We need to treat adolescents as the experts that they are,” she said.

When it comes to discussing sexual and reproductive health, all of the panelists reported that youth living with HIV have the same needs and preferences as other young people. Joanna Busza provided research from Tanzania – where youth make up 20% of those living with HIV – that showed a major disconnect between what young people living with HIV report that they need from their treatment and what they actually receive. Reluctance to discuss sexuality, family prohibitions on disclosure. and unclear expectations are putting young people at risk, she said. Alden Nouga responded to Joanna’s research, and added that Pathfinder’s 1,500 healthcare providers in Tanzania are receiving new training to help them meet the needs of youth living with HIV more effectively. And Dr. Susan Kassede provided much-needed data on the numbers of youth living with HIV – in 2010, 2.2 million adolescents ages 10-19 were living with HIV, and 65% of those youth were girls. She added that program officers, policy makers, and advocates must work together seamlessly to fill gaps and meet the needs of youth, including diagnosis, ART initiation and support, and disclosure support.

Thanks to everyone who participated in this important discussion. Working together, we can meet the needs of youth living with HIV and make growing old with HIV a probability, not a possibility.

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· 11:32 am

Highlights from Day 2 of IAC

By Alex Ekblom

Day 2 of the International AIDS Conference was action-packed. With speeches by Secretary of State Hillary Clinton and philanthropist Bill Gates, and with EGPAF events across the convention, Monday was a day to remember. A few highlights:

 

Plenary Session

All presenters remarked on how the epidemic continues to affect the lives of many, despite biologic and programmatic improvements, even in areas of this country and especially in the District of Columbia. They called for the marriage of biologic innovations to behavior change in order to reach the goal of elimination and for the empowerment of those living with HIV/AIDS and those at high risk of contracting of HIV to be heard in political and funding decisions around interventions.

Tony Fauci, Director of the National Institute of Health’s Institute of Allergies and Infectious Diseases, briefed delegates on the leaps and bounds treatment innovations have made to realizing the effectiveness of triple ARV. However, he underscored that we are losing people in the continuum of care (especially between testing and treatment initiation). He called for a need to link biologic tools for the prevention and treatment of HIV and AIDS with retention (we are even seeing the incidence of TB co-infection drop through ARV treatment of HIV). He added that we have the scientific basis to implement elimination, but what we need now is the coordination of efforts to change behavior, provision of support of positive health decisions and the reduction of HIV-related stigma.

Phil Wilson, President and CEO of the Black AIDS Institute, gave a compelling speech on AIDS incidence in this country and how it disproportionally affects black American men in the U.S. He emphasized that elimination is real, but all voices affected by this disease need to be heard in order to fight it. He furthered Fauci’s sentiment; elimination will require the combination of biologic innovations and behavior change through empowerment, ownership and increased access to a variety of prevention and treatment services.

Hillary Clinton, U.S. Secretary of State, introduced as the champion of the American dream and the first global leader to call for elimination of mother-to-child transmission, for an HIV-free generation gave a remarkable speech on the U.S. funding commitment to eliminate the epidemic. She illustrated a woman-centered approach, highlighting the need to give women access to completely adequate health care and support their reproductive rights. She underscored the need to access high risk groups (drug users, sex workers and MSM). Clinton promised US financial support to help fill the gap of women lost between testing and treatment. She promised U.S. $15 million to implementation research, U.S. $20 million to already existing services to key populations and U.S. $2 million bolster efforts for civil society groups. She encouraged other governments and private entities to invest in elimination.
EGPAF Presentations:

Posters: Lior Miller; Serge Agbo,  Mamorapeli Tsoeu, Sean Maher, Tatu Mtamablike, Tabitha Sripipatana, and Alleta Makatore presented posters today. To read their abstracts, or their posters, visit the technical knowledge base.

Appolinaire Tiam gave his oral presentation entitled “Family Health Days: An innovative approach to providing integrated health services for HIV and non-communicable diseases among adults and children in hard-to-reach areas of Lesotho”. The presentation went very well. Appolo answered a few questions on how this event will be further rolled out for Lesotho.

Sessions of Interest:

Improving Effectiveness and Efficiency in the HIV Response

Attended by U.S. Senators, Lindsey Graham and John Kerry, Bill Gates, former Minister of Health in Lesotho Mphu Ramatlapeng, World Bank President Jim Yong Kim, and U.S. Global AIDS Coordinator Ambassador Eric Goosby, this session focused on direction of HIV/AIDS programs and funding mechanisms. Bill Gates acknowledged in this discussion that we don’t yet have THE tool for elimination, which would be a cure or vaccine, but we are making progress with treatments and research. He highlighted work on the monthly microbicide ring for the prevention of HIV, tenofovir gels and the positive risk reduction observed from male circumcision. Kim focused his statements on a how we should more wisely invest HIV and AIDS programs, by focusing our funding on tried and true, best practices in the field- we have that knowledge now and we need to promote the further accumulation of that body of knowledge and the use of it in programmatic investments. Goosby discussed using a “feedback loop”, which would run from patient, to provider, to policy developers and government leaders and back again. He emphasized that this loop would give country’s ownership, and, speaking to Phil Wilson’s point, would allow patients a voice in development of improvements for their own health, and would strengthen “self-correction” in programmatic practices. Ramatlapeng further emphasized the need for country-specific investment.

 

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· 10:08 am

Uniting for an AIDS-Free Generation

This past Saturday evening, UNAIDS hosted an event called Uniting for an AIDS-Free Generation, held at the Kennedy Center in Washington, D.C.

“Uniting for an AIDS-free generation—the theme of the event—took the audience on a historical journey through the history of AIDS, highlighting the early days of the epidemic and key milestones in the world’s response to the disease. Through music and personal anecdotes, guests shared experiences of how HIV has shaped society and brought forward a global movement never before witnessed for a disease.”

Jake Glaser spoke about his mother’s legacy and work with Foundation, and later blogged about the experience and what it was like to meet Kweku Mandela, Nelson Mandela’s grandson.  The audience was also treated to an edited version of the Foundation’s “Countdown to an AIDS-Free Generation”, which you can see below.

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July 23, 2012 · 1:20 pm

“Together We Can” – EGPAF Zimbabwe Satellite Session on Eliminating New Pediatric HIV Infections through Public-Private Partnerships

By Alex Ekblom

On Sunday, the Zimbabwe team hosted their satellite, “Together We Can: Achieving Virtual Elimination of New Pediatric HIV Infections in Zimbabwe by 2015 Through Strategic Public-Private Partnerships”, which featured introductory remarks from Chip Lyons, and presentations from Nick Hellman, Agnes Mahomva, Auxilia Muchedzi, Batsi Chikwinya, Caroline Zinyemba, Angela Mushavi, Theresa Ndoro of OPHID and Peter McDermott, Managing Director of CIFF.

The satellite focused on Zimbabwe’s pediatric HIV context (151,000 children are living with HIV in Zimbabwe), engagement in the national pediatric HIV elimination agenda in Zimbabwe, and key innovations that will be rolled out to achieve this goal.

Angela presented on national strategies, including implementation of a results-based management system,  integration of health services, implementation of a multi-disciplinary approach, supportive engagement with people living with HIV, and how to strengthen human resource capacity, supply chain management, and lab capacity. Angela underscored the need for community involvement to achieve elimination.

Agnes presented on the recent rapid coverage expansion of PMTCT services  (especially in the accelerated coverage of more efficacious drug regimens) through a variety of approaches, including use of district focal persons, implementation of point-of-care CD4 testing, and mass communications on PMTCT. She indicated that meaningful partnerships with other NGOs and government agencies are instrumental in achievement of this national goal.

Batsi discussed implementation of the district focal person and how EGPAF trained 30 nurses to support districts to roll out increased coverage of PMTCT.

Auxilia presented on the national roll-out of 50 point-of-care CD4 machines, which (based on a quasi-experimental study of the intervention) have effectively increased testing of HIV and enrollment in care.

Carol focused her presentation on a national communications strategy deployed by EGPAF, in collaboration with the Ministry of Health and Child Welfare in Zimbabwe, which has included a training of 30 journalists on PMTCT, and newspaper and radio announcements on the importance of engagement in PMTCT.

Peter McDermott presented on a donor perspective focused on strengthened cost/data analyses. He indicated that what we should aim to not just change policy and practice in one geographic location for the better, but to build a body of knowledge around good HIV programming for global policy and practice change. He highlighted what it will take to eliminate pediatric HIV, which includes strengthened HR, M&E, task-shifting, record-keeping, and addressing  gaps  in the PMTCT cascade.

Nick discussed EGPAF strategies in achieving virtual elimination of pediatric HIV and highlighted challenges. The discussion portion of this satellite brought about interesting remarks, including how stigma is being addressed, how adolescents are being approached, what will happen with district focal persons after 2015, first ANC attendance and how it has been affected by the communications strategies, and issues around loss to follow-up.

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Filed under Advocacy, Countries, EGPAF, Global Plan, IAC 2012, Implementation, Pediatric Treatment, PMTCT, Public-Private Partnerships, Zimbabwe

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· 12:18 pm

Growing Up With HIV

By Jane Coaston

Children and adolescents living with HIV face unique challenges and questions, and they are often ignored in the discussions surrounding HIV/AIDS. At EGPAF, we’ve focused on the needs of children and young adults living with HIV for over twenty years. And we’re excited to see more attention paid to this key group.

Today on WAMU - American University Radio – reporter Kavitha Cardoza reported the first of a three-part story on youth living with HIV. On this morning’s broadcast, Cardoza brought listeners the stories of two young people living with HIV, Kendra and Luke (both names were changed to protect their privacy.)

Kendra was born HIV-positive, and learned of her status from a doctor when she was 13 years old.  Now 20, Kendra says that being HIV-positive has affected every facet of her life. ”I have a younger sibling and an older sibling who are perfectly normal,” she says. “I’m not saying I’m not normal, I’m saying I have to wake up and think of this. Every day.” She feels isolated from her peers, most of whom do not know about her HIV status. She says that she feels most comfortable at her hospital, where she can be free to discuss her status without worrying about the stigma.

Luke learned of his positive HIV status when he donated blood at the age of 16. He told Cardoza that he knew about HIV/AIDS, but he never thought that he could be infected. ”I was young,” Luke says. “That’s everyone’s thought. As kids, you think nothing’s going to happen. Kids are just so ignorant.” Luke has not told his family about his status, and has stopped planning for his future.  ”I’m not thinking of money, I’m not thinking of jobs, I’m just trying to make myself happy,” he says.

As we enter the International AIDS Conferences, the stories of young people like Kendra and Luke are vital to helping us understand the needs of youth living with HIV. Thank you to WAMU to bringing much-needed attention to the lives of young people living with HIV.

Today at IAC, we’ll be presenting a session on adolescent HIV: “Addressing the Psychosocial Support Needs of Transitioning Adolescents Living with HIV since Childhood: A Global Perspective” at 2:30 PM. There will be an additional session tomorrow at 11:00 AM in the Global Village.

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July 22, 2012 · 3:22 pm

Michel Sidibe Praises Advocates, Highlights PMTCT at IAC Opening Session

By Jane Coaston

During Sunday’s opening session of the International AIDS Conference, UNAIDS Executive Director Michel Sidibe paid homage to the many Americans who have fought for the end of AIDS, including Elizabeth Glaser. 

“We are indebted to the brave American activists  who gave a birth to the AIDS movement 30 years ago,” he said.

“We are indebted to the people who risk everything to come forward as the face of AIDS in all its diversity, Bobbi Campbell, Ryan White, Elizabeth Glaser, Magic Johnson, my friend Mary Fisher, and so many more.”

He also noted the world’s support of efforts to prevent mother-to-child transmission (PMTCT) of HIV worldwide.

“…The world has taken up my call in Vienna to eliminate mother-to- child transmission and keep mothers alive,” he said. “Since then 100,000 fewer babies have been born without HIV.”

You can watch Executive Director Sidibe’s speech here, and you can read his remarks here.

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· 12:23 pm

A Letter to All Advocates

By Jake Glaser

Advocates!

Jake Glaser here.

I’d like to share with you an amazing experience I had this past weekend. I was honored to join a group of outstanding individuals at a UNAIDS-hosted event called Uniting for an AIDS-Free Generation. Held at the Kennedy Center in Washington, D.C., the event kicked off this year’s International AIDS Conference.

This year marks the first time the conference has been on U.S. soil in 22 years, which made this event even more moving for me. For the past two decades, a travel ban has been in place that disallowed anyone with HIV from entering the United States or to seek a green card. WOW!!!!!! That’s kind of shocking.

My thanks to Congresswoman Barbara Lee, President Obama, and countless others who fought for the HIV community and our human rights by working to overturn this ban. Their work, an amazing moral initiative, started in 2007 with Congresswoman Lee, and came to a head in 2010 when President Obama ended the travel ban for HIV-positive individuals entering the U.S.

Saturday night was filled with amazing words, music, dance, and emotion. A true expression of life and a reaffirmation of our inherent connection as human beings and our passion to love, live, and save lives. I was honored to take the stage as a member of the next generation of advocates, alongside Barbara Bush – President George W. Bush’s daughter – and Kweku Mandela – Nelson Mandela’s grandson.

It was the first time I had met both Barbara and Kweku, and what an honor it was. Barbara is the CEO and co-founder of the Global Health Corps, a nonprofit that places young leaders with organizations working on the front lines of global health. EGPAF was one of the first groups to partner with GHC, placing fellows with our programs in Malawi, Uganda, and Zambia. And Kweku is a film producer and director, carrying on his family’s legacy by shedding light on many important issues.

It was a pleasure to share my thoughts and hear theirs while uniting at such an amazing event. As the three of us stood together, I felt a deep feeling in my heart.

We are the next generation. This is our fight now. This is our inheritance from those who came before us.

It’s time to take what we have learned from those who came before us, and apply it with new vision for the future.

My fellow generation, this is our time to make our stamp on history.

HIV/AIDS has given us an opportunity to show our bravery, to embrace our fear, and witness our courage. It is our duty to become one, join hands, work together, and let our potential shine.

When I look at this epidemic and the 27 years I’ve been on this planet, I am brought back to an ideal I hold dear to my heart.

Whether it’s curing HIV, saving the environment, or supporting our local communities through social focus, these issues teach us to learn and grow. They motivate us to make change, and remind us that fear is not something to be afraid of.

Fear is a tool that gives us the opportunity to mature and become more conscious in our lives, as a community together. These moments are in front of us every day, and it is up to us to make the choice and turn our dreams into reality.

The end of AIDS can be in our lifetime if we make that choice.

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July 20, 2012 · 1:41 pm

EGPAF to Highlight Issues of Children and Mothers at the XIX International AIDS Conference in Washington, D.C.

Washington, D.C. – The Elizabeth Glaser Pediatric AIDS Foundation (EGPAF) will highlight the latest research and implementation science on issues relating to pediatric HIV/AIDS and maternal and child health at the XIX International AIDS Conference, in Washington, D.C.

EGPAF will showcase its work and invite people to engage at the conference and from afar through its new blog, EGPAF@AIDS 2012: www.EGPAF-IAS.org.

Journalists can also download the Foundation’s newly updated toolkit, “A Journalist’s Guide to Reporting on Pediatric HIV and AIDS,” access media resources, and identify EGPAF experts attending AIDS 2012 at http://egpaf-ias.org/media/.

There will be 53 EGPAF delegates attending from various countries, including the U.S., Switzerland, Côte d’Ivoire, Kenya, Lesotho, Rwanda, South Africa, Swaziland, Tanzania, Zambia, and Zimbabwe.

EGPAF will be leading 4 satellite sessions, two oral abstract presentations, 2 workshops, and presenting 28 posters –

as well as serving as panelists on a number of other sessions. A sampling of EGPAF’s major activities includes:

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