Category Archives: Community

Statement from EGPAF and m2m on WHO’s Option B+ Approach to Protect the Health of HIV-Positive Mothers and Their Babies

WASHINGTON, D.C. – July 27, 2012 – At the XIX International AIDS Conference in Washington, D.C., there has been growing global momentum around optimal approaches to prevent transmission of HIV from mother to child and to keep HIV-positive mothers alive and healthy.

The World Health Organization (WHO) recently encouraged countries to consider accelerating the adoption of one of two options for preventing mother-to-child transmission of HIV (PMTCT) that both include added benefits for and emphasis on the health of mothers. Option B includes the use of triple-drug therapy for the mother during pregnancy and breastfeeding, and Option B+ continues that drug regimen for the mother’s lifetime.

The WHO’s three options – Options A, B, and B+ – all afford similar protection against mother-to-child transmission of HIV, but Option B+ has the greatest potential for health benefits for infected women, and can confer protection against transmission of HIV to an uninfected partner.

There is growing consensus that Option B+ represents an evolving best standard for protecting both mother and child from the effects of HIV. The Elizabeth Glaser Pediatric AIDS Foundation (EGPAF) and mothers2mothers (m2m) support the development and implementation of revised WHO technical and operational guidelines, and will assist the implementation of whichever option is chosen by national governments.

Adoption of Option B+ will require careful study of new and existing operational issues. EGPAF is prepared to use its considerable country presence, technical capacity, and research ability to investigate the operational issues that need to be addressed and understood for optimal implementation of this regimen. Issues that should be studied through operations research include acceptability, adherence, drug resistance, retention, safety, and funding. EGPAF has been an instrumental partner in assisting the WHO and individual countries to implement past guidelines, and will continue to assist as new guidelines are updated.

m2m will support country efforts to implement Option B+ by using its simple and effective Mentor Mother model to promote enrollment and retention in care. Because m2m’s Mentor Mothers provide additional human resources – educating and supporting mothers as they learn to understand, accept, and adhere to lifelong treatment regimens – they can further ease the pressure this new protocol might cause already strained health systems. m2m is prepared to use its trusted presence in communities to ensure that all women, especially those not currently accessing care, are able to benefit from Option B+.

As organizations working to implement the Global Plan towards the Elimination of New HIV Infections among Children by 2015 and Keeping their Mothers Alive, we are committed to overcoming any obstacle that prevents us from reaching our goal of ending HIV/AIDS in children and mothers.

There are still large numbers of HIV-positive, pregnant women who cannot access any effective PMTCT services, and so we must ensure that countries are able to accelerate efforts toward universal coverage.

We must also adequately address implementation barriers, such as weak health systems – especially in more rural settings – lack of human resources for health, and a need for significant education and community-based support to promote adherence to lifetime therapy and long-term retention in the health system.

We look forward to supporting countries to overcome these issues as they work toward achieving an AIDS-free generation.

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 About the Elizabeth Glaser Pediatric AIDS Foundation (EGPAF):  The Foundation is a global leader in the fight against pediatric HIV/AIDS, reaching more than 14 million women with services to prevent transmission of HIV to their babies. It currently works at more than 5,400 sites and in 15 countries to implement prevention, care, and treatment services; to advance innovative research; and to execute global advocacy activities in order to bring dramatic change to the lives of millions of women, children, and families worldwide. For more information, visit www.pedaids.org. For live updates and resources from EGPAF at the XIX International AIDS Conference, visit www.EGPAF-IAS.org, and follow us @EGPAF.

About mothers2mothers (m2m):  mothers2mothers (m2m) is eliminating transmission of HIV from mothers to babies and sustaining the health of women and children with its proven Mentor Mother model. Since its inception, m2m has reached more than one million mothers in nine countries. Founded in Cape Town in 2001, m2m is a partner in the United Nations’ Global Plan towards the Elimination of New HIV Infections among Children by 2015 and Keeping their Mothers Alive. Learn more at m2m.org or follow mothers2mothers @m2mtweets.

Contacts:

Michelle Milford Morse, mothers2mothers; Phone: 323-969-0445; us@m2m.org

Robert Yule, Elizabeth Glaser Pediatric AIDS Foundation; Mobile: 202-390-9540; ryule@pedaids.org

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Filed under Community, EGPAF, Global Plan, IAC 2012, Implementation, Pediatric Treatment, PMTCT, Research

Statement on the Importance of Community-Based Organizations in Pediatric HIV/AIDS Fight

By Robert Yule

Following its two-day symposium before IAC, the Coalition for Children Affected by AIDS – of which EGPAF is a member – issued a statement  about the importance of  community organizations in the fight against pediatric HIV and AIDS:

Symposium Calls for Community-Based Organizations to Have Greater Role in Efforts to
Eliminate New Pediatric HIV Infections

Washington, D.C. – Ahead of the XIX International AIDS Conference, 450 delegates from 57 countries participated in a symposium to discuss how community-based programs are central to international efforts to prevent mother-to-child transmission of HIV (PMTCT).

The symposium, “Children with HIV: Closing the Gap – Ending Vertical Transmission through Community Action,” brought together researchers, international NGOs, community organizations, and affected populations to examine how to better connect community organizations and medical service providers in ending pediatric HIV and AIDS.

While the global HIV community has largely focused on the medical needs of HIV-positive children, discussion at the symposium focused on how community-based engagement extends the reach of clinic-based services, addresses the needs of children affected by HIV regardless of their individual HIV status, and ultimately improves the health and well-being of entire families.

“Even if a child is born free of HIV infection, that child is not free of a life affected by HIV – which makes the care and support agenda for children more important now than ever,” said Kate Iorpenda, Chair of the Coalition for Children Affected by AIDS. “We have seen a lot of progress in ending pediatric HIV, but we won’t reach our goals unless communities are involved, and unless we pay attention to the most vulnerable families.”

The meeting also included the launch of a new supplement in the Journal of the International AIDS Society (JIAS) focused specifically on how community action is needed to meet the ambitious targets laid out in the Global Plan Towards the Elimination of New HIV Infections Among Children by 2015 and Keeping their Mothers Alive.

“The Global Plan to eliminate new pediatric HIV infections is changing how we think about the pediatric HIV epidemic,” said Professor Linda Richter, Distinguished Research Fellow at Human Sciences Research Council in South Africa. “We have long known that community action is essential to getting services to children affected by the disease, but the Global Plan is the first time the international community has explicitly stated that funding community organizations is an essential part of getting to the end of AIDS in the pediatric population.”

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About the Coalition for Children Affected by AIDS: The Coalition for Children Affected by AIDS believes that children need to be made a higher priority in the international response to HIV and AIDS. The Coalition brings funders and technical experts together to advocate for the best policy, research, and programs for children because children are a vulnerable population that has too often been overlooked. For more information, visit www.ccaba.org.

Media Contact:
Professor Linda Richter
+27 (82) 412 2589
lrichter@hsrc.ac.za

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Filed under Advocacy, Community, Pediatric Treatment, PMTCT

A Focus on Children before AIDS 2012 Begins

By Robert Yule

In recent years, before International AIDS Society (IAS) conferences even begin, there are two events that place a special focus on the effects of HIV/AIDS on children:

The symposium, Children and HIV: Closing the Gap – Ending Vertical Transmission through Community Action, opened today at the Georgetown University Conference Center, with a keynote address from U.S. Congresswoman Barbara Lee. The symposium brings together service providers, donors, researchers, advocates, and policy leaders – all to share data and discuss best pratices for children and families.

EGPAF, a member of CCABA, is presenting throughout the symposium, including talks by staff from the     U.S., Switzerland, Tanzania, and Zimbabwe. EGPAF topics on preventing mother-to-child transmission of  HIV (PMTCT) include:

  • Country-level efforts to scale up and integrate community support with medical services
  • Improving the continuum of care by promoting male involvement
  • Mobilizing community engagement through capacity building of media practitioners
  • Strengthening district capacity for rapid PMTCT scale up in Zimbabwe using the District Focal Person Approach

CCABA has produced a  great roadmap on pediatric and PMTCT-related sessions at AIDS 2012, and will be hosting their own session on Wed, July 25 on community involvement that EGPAF will be participating in.

EGPAF also has a strong presence at the 4th Annual International Workshop on HIV Pediatrics. The abstract-driven workshop shares the latest scientific data and discusses how to implement advances in PMTCT and pediatric treatment in the field.

Both the symposium and the workshop conclude on Sat, July 21, but will help drive the discussion of HIV and children and families throughout AIDS 2012.

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Filed under Community, Implementation, Pediatric Treatment, PMTCT, Research, Switzerland, Tanzania, U.S., Zimbabwe